Imagine after two years of wondering if the was even gonna be a baby in our future, we find out we are.. 9 months later little Gracie is born. 8lbs 7ounces. healthy baby girl. We get this call from a lady from the health department saying something about Cystic Fibrosis and our baby girl. I think this is not happening. i call the number the lady gave me to the clinic that we are supposed to have a n appt with in 2 weeks. The girl I talk to (Pridgett, the RT) tells me its gonna be OK and gives me very little info but calms me down. I didn't need info then she knew that. she did tell me to not look up info on the Internet cause it would just scare me. but if i had to, to look at the CFF website. During those two weeks we did alot of praying and alot of crying. Of course I was a basket case just from hormones and just having baby. My mom helped me threw alot just by being there , never telling me how i should feel or what else i should be doing, just being there. and being strong -- as usual.
On that day--SEPTEMBER 11,2008 we went to our appt at the CF clinic. I think it was early in morning like 8:30 i think. Little did i know these people i would meet that day would become important people in my life. As they did the routine sweat test and explained what CF was I was obviously listening but not listening. Cause in my mind this WAS NOT HAPPENING. i know DR Miller had to be worried cause it was written all over my face. After Dr Miller left the room and other team members came to check on us a nurse came in. Nurse Audrey :) poor thing - she came to tell us our sweat test was negative which was expected because 3 week old babies don't sweat. I told her looking at Gracie that next time it would still be negative. She looked at me and said "You don't understand the newborn screening says she had two genes which means she has CF." I just balled, I'm sure she did too- she left room quickly. But if she'd stayed she would have felt this unimaginable peace in that room as my mom started to pray over us. God just came in that room and filled it with huge peace. And no joke I knew it was gonna be OK. I'm not saying it like a cliches I mean really i knew without a doubt that it was all gonna be OK. I went from balling my eyes out to It's gonna be OK i know it!!!!!!!!!!!! next the nutritionist (Stephanie) came in and gave us our first of many solutions- enzymes for digestion. They told us they wanted to be part of our family. they are SOOOOOO that.
Gracie is now 2. her health is a testament to how great God is. the greatest. I have learned sooo many lessons in this too. He is MY rock. all the time no matter what HE is there. His promises stand true. Now we have problems just like everyone else . I'm not saying that we don't it's just it's a new normal and we trust God to lead us and to" perfect that which concerns her" as he has promised. WORRY ENDS WHERE FAITH BEGINS. I have battled that still do some but it s gets better with practice. doesn't mean it is easy- it's a total contradiction to this world but it is necessary to live in this world.
i want to be for real in this blog. so as i put to words this journey i hope you will go with me and if there is a comment please feel free to leave it.
